Jonathan Pitre (The Butterfly Child)

This is a short video I edited in 2015 to support little Jonathan Pitre's EB cause. Seeing this kid appear on television with a big smile, knowing that he lives with EB disease, kind of helped me appreciate life a little more. I felt the need to make this video for him to help get him on the Ellen Degeneres TV show so he can share his story with the world. This kid is a soldier in my book and no matter how much taller I am than him, I sincerely look up to him (see what I did there?) for being such a strong kid. Please read on to get a better understanding of what EB is. --------->

Those with EB endure pain every day of their lives because their skin is so sensitive that it blisters and tears from even the mildest contact. Jonathan, 14, has a severe form of the disease, Dystrophic EB, which has left him without the “glue” that connects his top layers of skin. His entire body must be wrapped in gauze day and night to protect him from trauma and infection. The story and pictures, which have been viewed more than 560,000 times online, generated a flood of well wishes and donations to his cause. More than $50,000 has already been received by the EB charity, DEBRA Canada. A chunk of that will be used to finance Jonathan’s dream trip to see the Northern Lights with his family. The rest, Jonathan has announced, will go toward helping other EB patients fulfil their own dreams. A Grade 9 student, Jonathan has dedicated himself to raising awareness about the disease and told his story to the Ottawa Citizen last month. Now, let's help him share his story with the world by being a special guest on The Ellen Degeneres Show. Please share this video on Facebook & Twitter with hashtag #BUTTERFLYCHILD #THEELLENSHOW #ELLENDEGENERES Read more: http://ottawacitizen.com/news/local-news/butterfly-child-jonathan-pitre-inspires-tribute-from-athletes-sportscasters Watch the following video to get a better understanding of Epidermolysis Bullosa disease: https://www.youtube.com/watch?v=vJtqdviBi3Y